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Data Protection or exploitation? The erosion of safeguards for health and genetic research
27 May 2015
"This briefing describes proposed changes to the “research exemption” which, if adopted, would allow data to be stored and shared with commercial companies without people’s knowledge or consent. It considers the implications of these changes for the future storage and use of personal medical records and genetic data."
See the full text:
Data Protection or exploitation? The erosion of safeguards for health and genetic research (Genewatch, link)